Yesterday was an important day for Noelani. We went to the Children’s Hospital in Denver and met with a slew of Dr.’s to come up with a plan of action for her repaired cleft lip/cleft palette.
Noelani is very aware that her teeth and her lip is different than other people. Her teeth are a mess. There are two in the roof of her mouth, and others that are in the wrong place in her mouth. Even thought she couldn’t understand most of what we talked about, she understood that she will be getting her teeth fixed, and that is very exciting for her.
I didn’t know, but often children with cl/cp have other problems associated with this defect. One problem is usually in the ears. There was good news and interesting news in this area for Noelani...no fluid in her ears, which they see a lot. That is great. However, she does have “mild” hearing loss and might have been born with it. That was the interesting. However, also good, she may not need any thing (hearing aids or surgery) done since she seems to be doing so well. The one concern is that her language development, her ability to say letters and sounds, is not very good, and there is a question that the hearing loss might be effecting that.
So the plan....
-get a healthy mouth...that is going to take some time. She needs some teeth pulled, braces, and a bone graft surgery.
-The most important next, but more immediate step is speech therapy. We are meeting with a lady on Thursday.
I am really praying for the LORD’s leading in all these area’s. There are so many puzzle pieces that I’m still not sure of, yet, we have a plan and I remind myself often of the LORD’s advice in the Bible; “Do not be anxious about tomorrow...” Today has enough to deal with. I get so stressed when I start trying to “take care” of all my troubles right now. May be my “plate” seems so full because I take on problems and things that do not belong to “Today”.
I know I haven’t written much about Clive. I will be catching up on my newest little man soon.
Thank you for your prayers and thoughts for us.