We have followed the “normal” medical routes, and nothing was helping. Garett had reached the point of staying hydrated, but starving. Finally, one weekend last month, we became so frustrated with what he was going though (he was gagging and throwing up every 15 minutes), that we took him to an emerge care facility.The doctor there sent us to have a swallow test done. A week later we found out that Garett has a “web” in his throat...think “spider web”. His body is instinctively trying to protect itself from choking to death by gagging and throwing up. Of course, the down side is he also can’t eat and is “starving”. Of course, we have been giving him protein drinks and trying to “liquify” his food as much as possible.
Still, he is hungry all the time, and you can see here that he is all “bones” (he didn’t have any weight to loose anyway!!!). He has lost almost 5 pounds since things really got bad, and there is only so much you can do for a growing child on a liquid diet.
We have been frustrated with the way some of the medical community has handled this. Things should have happened sooner, and I’m just not going to go into the details beyond saying that there have been mistakes made that my son has paid the price for. The LORD heard my cries this last Friday and sent us to a doctor that is taking seriously what Garett is going through.
Garett will have a CAT scan tomorrow and then we will have an “emergency” appointment with this doctor to find out what needs to happen to open up Garett’s esophagus and get him back to eating.
I would so appreciate prayers for Garett. This has gone on for so long, and he has dealt with it very well. Still it has hurt me so much to watch him getting skinner and skinner. And it hurts Steve and I so bad to hear him again crying because he is hungry and we can only offer the “same ol’ things” that we have been offering for almost 6 months now.
Thank you for your prayers and for sharing these difficult times with us.